As a child, Christina Stephens filled her parents’ basement with Lego castles and pirate ships. When she put her Lego-building skills to work last month making a prosthetic leg out of the children’s toy, she became an Internet sensation.
Stephens, 31, lost her left foot in an accident this winter and decided to combine her clinical expertise as an occupational therapist with her own experience of losing a limb to help others dealing with amputations. Stephens began a series of YouTube videos and a Facebook page under the name “AmputeeOT,” in which she addresses issues that many new amputees struggle with. Among them are how to swim with and without a prosthetic, deal with phantom limb pain, and clean an amputation site and prosthetic liner.
But it was her construction of a prosthetic leg out of hundreds of Lego pieces that made her an Internet star. The YouTube video has more than 1.3 million views since it was posted in early July. Stephens plans more videos, and she has a second Lego leg — “Lego Leg 2.0,” she called it. This one has moveable pieces — but it’s still for show only.
“Part of what I want to do with my videos is de-stigmatize amputation and make it less scary,” Stephens said.
A 2009 Cambodian beauty pageant for disabled women was full of land mines from start to finish. Testing taboos, a Norwegian theater director wanted to draw attention to survivors in a war zone. Twenty women scarred by decades of war were to parade their amputated bodies for the chance at a new prosthetic limb. The organizer had the support of the government’s mine action agency.
Days before the debut of a photo exhibit, a lead-up to the live pageant, there was much indignation and all support collapsed. The cancelled pageant provoked controversy even in its aftermath.
Sophie de Oliveira Barata works out of a bright white, semi-disheveled northwest London studio surrounded by feet and fingers, legs leaning against walls and hands that look real enough to shake. With a background in art and special-effects makeup, she worked for eight years for a prosthetics manufacturer before deciding to become a creator of bespoke limbs. “It meant I could use my creative skills and do something massively rewarding,” she said, dropping an oddly appealing man’s foot in my lap. “Making an alternative limb is like entering a child’s imagination and playing with their alter ego,” she said. “You’re trying to find the essence of the person.”
In 2011, Sophie de Oliveira Barata started the Alternative Limb Project and soon found interested clients. She created one leg with a stereo embedded in it, another with removable muscles and a third, among others, that housed minidrawers. Recently she began collaborating with artists skilled in animatronics, 3-D printing, metalwork and carbon fiber.
“After losing a limb, a person isn’t the same,” de Oliveira Barata said. “So this is a form of expression, an empowerment, a celebration. It’s their choice of how to complete their body — whether that means having a realistic match or something from an unexplored imagination.”
Photo: Ryan Seary – formerly an Explosive Ordnance Disposal Technician, US military
Toronto’s Sunnybrook Centre for Independent Living (SCIL) has a 25-member team of prosthetists, technicians and other experts. SCIL helps complex trauma patients regain independence and mobility with customized prostheses and individualized rehabilitation.
Prostheses are made in the on-site lab. The first step in creating a new limb is to make a socket in the stump or residuum. The artificial body part attaches inside the socket. The prosthetist takes detailed measurements of the residuum and then creates a cast of it – similar to that for a broken limb. When that cast dries, plaster is poured into it to make a form of the limb. The form is then carefully smoothed down and filed until it becomes an exact replica of the residuum. The amputee is fitted with a test socket and a limb and learns to walk with this set before the definitive socket and limb are finalized.
Technician Paul Russell says there is “a bit of an artistic feel and flow,” as some amputees need their sockets to be very strong and others want them to be light. “You’re trying to walk the line between something that’s strong enough and something that is not too heavy.”
Patients often develop a strong, lifelong bond with their prosthetist. The more the experts get to know the amputees, the better they are able to create sockets that work for their lifestyle. Getting the artificial limb for the first time can be a life-changing experience.
Experts have confirmed two wooden toes as the world’s oldest prosthetics. Discovered in the necropolis of Thebe near present-day Luxor, the so-called Greville Chester toe is from before 600 B.C. It is in the shape of the right big toe and a portion of the right foot. The other, dated between 950 and 710 B.C., was found attached to the right toe of a mummy identified as Tabaketenmut. She was a priest’s daughter who might have lost her toe following gangrene triggered by diabetes.
Both fake toes show significant signs of wear. Moreover, they feature holes for lacings to either attach the toes onto the foot or fasten it onto a sock or sandal.
Researchers created reproductions of the Greville toe and the Tabaketenmut digit, along with replicas of leather ancient Egyptian-style sandals. Two volunteers, both of whom are missing their right big toe, participated in a gait analysis and other tests that were reported in the Journal of Prosthetics and Orthotics. For more detail, follow this link:
Spencer West redefines height – in his spirit, in the way he lives, and in the actions he takes to affect other people’s lives.
Now two-foot-seven, Spencer was born with a spinal defect and legs that didn’t function. He was five when his doctors felt they had no choice but to amputate them. They said he wouldn’t be able to sit up or move around by himself. Spencer defied that prediction by learning to use his arms to move. Prosthetics weren’t for him.
While most people would be hard pressed to use their feet to walk the 300-kilometre distance from Edmonton to Calgary, Spencer West recently made the journey almost entirely on his hands. His purpose was to raise funds and awareness for Me to We /Free The Children’s ‘We Walk 4 Water’ campaign. The donations will provide a permanent source of clean water for 100,000 people around the world.
Spencer West is a favorite motivational speaker at Me to We events. Stories of his feats inspire audiences of school children across Canada. For example, he climbed the 19,341 foot-high Mount Kilimanjaro, raising more than half a million dollars in a similar Me To We campaign. He urges others to go beyond their perceived limitations and to give of themselves.
Check out Spencer’s best-selling autobiography “Standing Tall: My Journey”. Also, his experiences feature in the documentary “Redefine Possible: The Story of Spencer West” that was shown at the 2012 Toronto International Film Festival.
But here is the next best way to learn more: TOMORROW, JUNE 17, 2014
There will be a LIVE-STREAMING of SPENCER WEST SPEAKING from 10am to 11:30 am EST at: www.freethechildren.com/watch
From: New York Times Magazine, February 17, 2013
“All Quiet on the Washington Front”. An interview with Congresswoman Tammy Duckworth by Andrew Goldman. http://www.nytimes.com/2013/02/17/magazine/tammy-duckworth.html?_r=0
Tammy Duckworth, a strong woman of small stature, flew a Blackhawk helicopter in Iraq in 2004. It was shot down. Unassailable in her mission to serve Americans, she flies a desk in Washington these days.